http://www.indiegogo.com/projects/tiny-house-big-heart?c=home
I am nowhere near being able to have my tiny home/gallery/art studio to go, but I think the artist in the video I linked to above is heading towards their dreams in a wonderful way. I'm broke right now due to medical bills, but as soon as possible I hope to make a donation towards their tiny house :) Please watch the awesome video and check out their perks.
Monday, May 13, 2013
Tuesday, May 7, 2013
My Mysterious Red Hulk Disease
May 1st, 2013 - Pale and Sick, but not mid Occurence |
April 16th I went in for a deep cleaning at the dentist. All seemed to go well. That night I had the first occurrence of whatever mysterious health problem I have been suffering from. The symptoms were weird and included initial itching on one part of my body that then turned into a painful prickly burning head to toe, & a flushed face and palms. It was then followed by gastric distress which lasted for hours before I parked myself in the bathroom in fear of vomiting etc. and found myself in a cold sweat and losing consciousness. My body evacuated everything in it just before the EMTs arrived to find me laying on the bathroom floor shivering uncontrollably, and unable to sit up without passing out.
That first time at the ER they got me re-hydrated, gave me Benadryl and sent me home. They were convinced it was allergies to the Novocain or some such thing, although there was no proof and my white blood cell count was up which they said might indicate an infection, so they told me to follow up with my Primary Care doctor and Endocrinologist, which I did.
May 2nd - "Red Hulk Disease" Lobster Face in Lab |
Final I.V. and red stripe (reaction to an antibiotic) |
In St Joe's ER they gave me I.V. fluids, and covered me in warm blankets to raise my body temperature which had dropped. My veins kept collapsing or running away from them, which was painful to say the least. My GI problems worsened so they admitted me to the hospital. They gave me 2 bags of IV fluid in the ER, and two in the room plus more with antibiotics before I started feeling more stable and my blood pressure started to go back to a more normal place.
I was in the hospital from May 2nd through the 5th. While in the hospital they took an EKG and X-ray of my chest, discovered it was clear, did a CT scan of my gut and discovered swelling "colitis" but no visible masses. I started to feel like a pin cushion as they had a very hard time finding veins. While in the hospital, the blood and urine tests came back to show that my white blood cell count was really high, indicating an infection, and they gave me I.V. antibiotics, which I developed an allergy to, and Flagyl which I am able to take in pill form. They ruled some things out but found no clear answers, stabilized me, and released me to recover at home and follow up with various doctors.
Patch Sleeping on the Couch in Room 5T10 |
Good News - It's Not Ecoli, Cdiff and It's Not a Tumor! |
They found many things which I do not have including heart disease, E-coli, Cdiff, some genetic blood disorders, Celiac disease, a GI tumor, or Cushings, and they took some biopsies to look for other things. I have an appointment tomorrow afternoon to find out the biopsy results and follow up with the GI specialist who treated me at the hospital. The list of things that are not wrong with my body are increasing, but they have yet to narrow down what has been causing my symptoms so I am really hoping he has answers for me tomorrow afternoon and we can resolve these issues ASAP so that my body can heal.
On an up note, I am stronger every day, At first I was so weak that I was barely able to walk back and forth from the bedroom to bathroom and I spent the first two days at home sleeping a lot. My big excursion yesterday was a trip to the next room to sit on Patch's lazy boi chair while she cooked, but today I was able to come sit on the couch with my family for dinner and a few TV shows, surf the net, write this blog, and do some research about dying yarn. I missed my trip to Hawaii and had to cancel my plans to attend the Men's Knitting Retreat next week as I will be at doctors and hopefully healing, but I will not be anywhere near ready to fly to New York and participate in a retreat.
May 7th, Finally Able to Sit on the Couch |
Update: Tests are still being done, but it turns out to be, at least in part, due to Anaphylaxis caused in part by Oral Allergy Syndrome. More tests are being done.
Update 2: 6-30-13 After my Hospital visit in May (during which they said they were 99% sure I did not have C-difficile, I tested positive for it and was put on a total of 20 days of medicine to kill it off. In 2 weeks I will be tested to see if it worked. Fingers crossed. My allergic reactions continue, see later entries for details
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